Independent guidance for better public participation in health and care research
Training and support

Different approaches to providing support

Support works best when it responds to the role, experience and circumstances of the people involved in research.

Small group discussing work around a table
A practical overview

Choose support that fits the situation

There is no single model for supporting public involvement. A useful approach takes account of the project, the people involved and the type of help that is needed.

Support can be offered by a public involvement lead within an organisation, a peer support worker, a research lead or committee chair, a peer with relevant experience, or an appropriately qualified wellbeing professional. Different people may be well placed to offer different kinds of support.

For example, a research lead or senior manager may help with supervision, project planning and practical decisions. A peer or wellbeing professional may be better placed to offer space for reflection, confidence-building or personal support. Be clear about what each role can provide and where further help may be needed.

Approaches to consider

  • Mentoring can pair a newer contributor with someone who has relevant experience and can help them settle into a role.
  • Coaching can help people identify goals, build confidence and reflect on how they want to contribute.
  • Group meetings, shared learning sessions and support groups can create space for people to compare experiences and learn together.
  • Peer support roles can provide practical insight from someone familiar with public involvement or a shared experience.
  • Remote support, including telephone or email contact, can be useful where people need flexibility or cannot attend in person.

The most suitable approach depends on scale and context. An organisation supporting several teams may need a coordinated offer, while a small research group may benefit from regular contact and a named person who can respond to questions.

Peer support

Peer support can help people feel more confident in their role, share practical strategies and learn from one another. It is based on a relationship of mutual respect between people with a relevant shared experience, whether that is involvement in research, a health condition, disability or another aspect of lived experience.

It may happen one-to-one or in a group. It can also develop informally when teams make time and conditions for people to connect safely and on equal terms.

Creating the conditions for peer support

  • Allow time before or after meetings for informal conversation and shared reflection.
  • Invite group members to discuss their own experience, confidence and learning needs if they wish to do so.
  • Consider a peer mentoring arrangement between experienced contributors and people who are new to a panel or group.
  • Offer agreed ways for people to stay in contact between meetings, while respecting privacy and communication preferences.
What to build in

Support should be clear, accessible and proportionate

A named contact

Make sure people know who they can approach with practical questions, concerns or requests for adjustment.

Clear expectations

Explain the purpose of the role, likely time commitment, boundaries and the decisions people can influence.

Regular review

Check in as work develops. Needs may change with the task, the stage of research or a person’s circumstances.

How to put this into practice

A simple route to a supportive plan

Discuss needs early

Ask what would help people contribute with confidence before the work begins.

Match people and roles

Identify who can provide practical, peer or specialist support where needed.

Agree ways of working

Set out communication, confidentiality and routes for raising concerns.

Review and adapt

Check that support remains useful and make changes in response to feedback.

Common questions

Support planning FAQ

Who should provide support?

The right person depends on the need. A project lead may provide practical guidance, while a peer or qualified wellbeing professional may be better placed for other forms of support.

Is peer support a replacement for formal support?

No. Peer support can be valuable, but it should sit alongside clear organisational responsibility and suitable specialist support where required.

Can support be provided remotely?

Yes. Telephone, email and other agreed digital methods can make support more flexible. Check that the format is accessible and works for each person.

How often should a team check in?

Agree a regular pattern at the start and make it easy for people to ask for a conversation at other times. The right frequency will vary by role and project stage.

What should be included in a support plan?

Include the purpose of support, named contacts, communication preferences, adjustments, boundaries, confidentiality and how the plan will be reviewed.

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