Page renewal summary

This communities page has been rebuilt as an accessible overview of routes for public involvement, community connection and shared learning.

Independent guidance for better public participation in health and care research
Communities and connections

Find a route into public involvement

Communities bring together people with lived experience, research teams and organisations that want research to respond to real-world priorities.

A diverse group talking together outdoors
Working alongside people

Connection makes involvement more relevant

Public involvement works best when people can find clear, supported ways to contribute their perspectives and when teams are ready to listen, respond and share decisions.

This page gathers routes for finding opportunities, learning about organisations that support involvement, and understanding how communities can shape research questions, materials and communication.

Choose a starting point

Ways to connect

Use the route that best reflects what you need: an opportunity, a local connection or a practical source of support.


For members of the public

Find a clear introduction to opportunities and the questions that can help you decide whether a role is right for you.

Explore opportunities →
What good connection includes

Practical foundations for inclusive involvement

01 / Clear purpose

Explain the opportunity

Set out what the work involves, what may be influenced and what contributors can expect from the process.

02 / Accessible routes

Reduce barriers

Offer information in useful formats, allow time for questions and consider what support people may need.

03 / Respectful exchange

Value different knowledge

Create room for lived experience alongside research expertise, without assuming one perspective speaks for everyone.

04 / Visible follow-through

Share what happened

Record decisions, provide feedback and explain how contributions informed the next stage of work.

A useful approach

From first contact to shared learning

A thoughtful process helps people understand their role and helps teams make the most of public insight.

Describe the need

Make the topic, role and likely commitment understandable before asking anyone to contribute.

Reach widely

Use more than one route where possible and consider which perspectives may otherwise be missed.

Support contribution

Provide relevant context, accessible materials and a clear point for questions during the work.

Reflect and respond

Share decisions, acknowledge learning and explain how people’s input was considered.

Common questions

Communities FAQ

Do I need research experience to get involved?

No. Public involvement values people’s experience, perspectives and knowledge of what matters in everyday life. A role should explain any support or background information available.

What kinds of activities might contributors do?

Activities can include discussing priorities, reviewing information for clarity, helping shape study plans, considering recruitment approaches or contributing to how findings are shared.

How can I decide whether an opportunity is suitable?

Ask about the purpose, expected time, format, support available and how decisions will be made. It is reasonable to request information before agreeing to take part.

Can organisations use community connections to plan involvement?

Yes. Connections can help teams learn from organisations and networks already supporting people with relevant experience. Teams should be clear about the purpose of contact and avoid treating one group as representative of everyone.

What should research teams provide to contributors?

Teams should offer clear information, accessible communication, appropriate support and feedback about how contributions were used. Guidance for planning this work is available in the resource centre.

Where can I learn more about public involvement?

Start with Find out more or browse the resource centre for practical guidance and reference material.

Need a starting point?

Ask about a community route

Send a concise description of what you are looking for and the stage your work has reached. Involvestory will help you identify relevant material on this site.

Email Involvestory