Advice that can influence research decisions
ALPHA was a research advisory group for young people aged 14 to 21. It brought young people’s perspectives into public health research discussions, including conversations at the stage when project ideas and funding applications were still taking shape.
The group supported a programme of work on children’s and young people’s health and wellbeing. Its members considered proposed research, discussed public health topics and helped researchers understand what mattered to young people in the design and communication of studies.
A standing group can offer continuity. Over time, young people can become familiar with research processes, build confidence in contributing and develop constructive working relationships with the teams seeking their advice.
What a standing advisory group made possible
- Dedicated support for involvement, informed by both youth work and research practice.
- Opportunities for young people to comment on ideas while research proposals were being developed.
- Longer-term relationships between group members and research staff.
- A way for participants to give feedback on involvement sessions so that future meetings could improve.
Starting in familiar settings
The case study highlights a staged approach to recruitment. Initial conversations took place in settings where young people were already comfortable, with clear information about the group’s purpose and what membership might involve. Interested young people could then attend a trial meeting and decide whether the role suited them.
Trusted adults could provide support where wanted. This approach recognised that joining a university-based advisory group may feel unfamiliar and that people need enough information and time to make an informed choice.
Support that removes barriers
Practical arrangements matter. The group’s learning emphasised access to transport in advance, rather than expecting young people to meet costs before reimbursement. It also recognised the value of acknowledging skills and experience gained through involvement.
Support should be discussed openly at the outset and reviewed as needs change. Accessible information, clear expectations and a welcoming meeting format help make participation possible.
Making room for young people’s priorities
The group reserved time for young people to raise their own ideas and questions. Researchers then reported back on what had happened in response, including where an idea could not be taken forward. This helped make the link between discussion and action visible.
In one area of work, young people’s observations helped a research team refine how it compared online communication after different kinds of bereavement. In another, members contributed to a study identity and participant-facing information. These examples show how involvement can influence both research questions and the materials people encounter.