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This guidance page has been updated with a clear planning framework, accessible reading structure and links to related resources.

Independent guidance for better public participation in health and care research
A group of people in discussion at a shared table
Planning public involvement

How to involve people in research

Plan meaningful opportunities for people to shape research questions, decisions, materials and the way findings are shared.

Start with purpose

Choose an approach that fits the work

Public involvement is not a fixed set of levels. A project may bring together several approaches at different stages, depending on the question, the decisions that are open and the interests of the people involved.

For example, a small group of contributors may work alongside a research team throughout a project, while a wider group is invited to comment on a particular part of the study. In some cases, members of the public may lead a specific stage of the work. The important point is to be clear about the purpose, the scope for influence and the support available.

Involvement can help teams test whether a research question matters in everyday life, improve the clarity of study information, identify practical barriers and make findings more useful to the people affected by them.

How we work

Build involvement into the project

Good preparation helps everyone understand the purpose of their contribution and how it can make a difference.

Set the purpose

Identify which decisions could benefit from public insight and what contributors can genuinely influence.

Invite fairly

Consider whose experiences are relevant, who may be missing and how barriers to taking part can be reduced.

Support the work

Provide clear information, accessible ways to contribute and time to discuss unfamiliar research language.

Record and respond

Keep track of contributions, explain decisions and share what changed or could not change.

What to consider

Practical foundations for meaningful involvement

01 / Before you begin

Prepare a realistic plan

Decide why involvement is needed, what will be discussed, what resources are available and how decisions will be communicated.

Explore planning guidance
03 / Clear information

Use plain English

Explain the question, methods and possible decisions without unnecessary technical language. Give people time to review information.

Plain English summaries
04 / Learning

Review the experience

Ask what helped, what created barriers and what should be different next time. Share learning with everyone involved.

Explore practice examples
Related guidance

Find the detail you need

These resources expand on planning, support and feedback for different parts of the research process.

Information for researchers

Guidance to help research teams plan, deliver and reflect on public involvement.

Find out more →

Research commissioning

Considerations for involving people when research priorities and programmes are being developed.

Find out more →

Feedback guidance

Practical prompts for closing the loop and showing contributors how their input was considered.

Find out more →
Common questions

Planning involvement

When should public involvement begin?

Start as early as possible, while the research question, design and priorities are still open to change. Early involvement gives contributors a clearer opportunity to influence the direction of the work.

How many people should be involved?

There is no single number. Think about the decisions to be made, the range of relevant experiences and the practical support needed for a constructive conversation.

Do all contributors need research experience?

No. Lived experience and everyday knowledge are valuable forms of expertise. Teams should explain research concepts clearly and provide support where it is useful.

Are meetings the only way to involve people?

No. Depending on the work, contributors may prefer written comments, individual conversations, short workshops or other accessible formats. Discuss what works for the group.

What should happen after people give feedback?

Record the feedback, explain how it informed decisions and be open where a suggestion cannot be taken forward. This response is an essential part of respectful involvement.

Where can I find definitions of research terms?

The jargon buster explains commonly used terms in clearer language.

Need a starting point?

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