Independent guidance for better public participation in health and care research
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For members of the public

People in Research

Explore ways to contribute your experience and perspective to health, public health and social care research.

People discussing research ideas in a bright meeting space
A starting point

Research benefits from public perspectives

Public involvement gives people a chance to help shape research questions, plans, materials and communication.

There are many ways to contribute. You might review information for a study, join an advisory group, help set priorities or share feedback on how a project is being run. The right role depends on your interests, experience and the time you have available.

Opportunities should explain what the work involves, what support is available and how contributions will be used. It is reasonable to ask questions before deciding whether a role is right for you.

What you can do

Ways to contribute

Roles vary between projects. Clear information and a supportive approach can help you decide where your experience may be useful.

Review research information

Comment on study summaries, consent information or recruitment materials to make them clearer and more relevant.

Explore plain-English guidance →

Join a group or panel

Bring your perspective to discussions about priorities, study design, delivery or the communication of findings.

Learn about community spaces →

Help improve a project

Share practical feedback about what may make a study more accessible, understandable and useful to people.

Read about getting involved →
Before you begin

Questions worth asking

01 / Purpose

What will I be asked to do?

Ask for a clear description of the role, the decisions that are open to influence and the expected time commitment.

02 / Support

What support is available?

Find out about induction, accessible formats, preparation, named contacts and any other help that would make participation possible.

03 / Recognition

How will my contribution be recognised?

Discuss practical arrangements openly, including expenses, recognition and the information needed before you accept a role.

Read about recognition →
04 / Feedback

How will I hear what happened?

Ask how the team will explain the influence of public contributions and keep people informed as the work develops.

A constructive approach

Taking part with confidence

Good public involvement is based on clarity, respect and a shared understanding of the work.

Consider the opportunity

Read the information and identify what interests you, what is unclear and what practical support you may need.

Ask informed questions

Talk through the role, expected commitment and the ways your insight could influence the project.

Share your perspective

Bring your experience honestly and constructively. You do not need to be a research expert to contribute.

Look for feedback

Ask how the team will report back on decisions, learning and next steps after your contribution.

Common questions

People in Research FAQ

Do I need research experience to get involved?

No. Public involvement values lived experience and perspectives that can help a team understand what matters to people. A good opportunity should provide the information and support needed for the role.

How much time will a role take?

This depends on the project. Ask how often meetings will take place, how long preparation may take and whether the time commitment is likely to change during the work.

Can I ask for information in a different format?

Yes. Let the organiser know what would help you take part, such as clear language, accessible documents, advance papers or another way to contribute.

What if I do not understand a research term?

It is appropriate to ask. Research teams should explain necessary terminology clearly. The jargon buster can also help with common terms.

Will my views make a difference?

Teams should be clear about what can be influenced and should explain how they have considered contributors' views. Not every suggestion can be adopted, but feedback should be shared openly.

Where can I find more guidance?

Start with the getting involved guidance or visit the frequently asked questions page for further information.

Need help finding your way?

Start with a question

Send a concise outline of what you would like to understand about public involvement. Involvestory will help you identify relevant guidance on this site.

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