What public involvement means
Learn where public contributors can have an influence and why this work is valuable to research teams and communities.
Explore the basics →Explore the foundations of public involvement in research: what it means, how people can contribute and how research teams can create meaningful opportunities.
Public involvement brings the insights, priorities and practical knowledge of people with relevant experience into research decisions.
It is distinct from being a research participant. People involved in research may help set priorities, improve plans and materials, consider how a project is run, or help share learning in ways that are useful to others.
This introduction can help you identify the route that best matches your role and the questions you want to explore.
Whether you are considering a role in research or planning involvement as part of a project, begin with the information most relevant to you.
Learn where public contributors can have an influence and why this work is valuable to research teams and communities.
Explore the basics →Plan inclusive, well-supported involvement that is clear about purpose, roles, information and feedback.
Plan involvement →Consider possible roles, the questions to ask before joining a project and ways to share your experience constructively.
Find your starting point →Explore approaches where people with direct experience play a leading role in setting, directing and managing research.
Read about user controlled researchConsider age-appropriate ways to support children and young people to contribute to research that affects their lives.
Explore involving children and young peopleFind material to help people build confidence, understanding and practical skills for involvement.
Explore learning and developmentResearch terms can make it harder to contribute. Use plain explanations as a starting point for clearer conversations.
Browse the jargon busterEffective involvement takes preparation, openness and follow-through.
Explain the question, the choices that are still open and the contribution that is being sought.
Share information in useful formats and identify practical support before people are asked to contribute.
Allow time for discussion, value different forms of knowledge and avoid unnecessary technical language.
Record what was learned, what changed and why a suggestion may not have been taken forward.
No. Lived experience, practical knowledge and a willingness to discuss a research topic can all be valuable. The role should be explained clearly, alongside any support available.
They can influence decisions when teams identify meaningful opportunities early and are transparent about what is open to change. Teams should explain the scope of the role from the outset.
Ask about the purpose of the work, what you will be asked to do, the time involved, who you will work with, what information will be provided and how feedback will be shared.
Use plain language, explain necessary terms, provide context and allow enough time for people to read, reflect and ask questions. The jargon buster can help with unfamiliar terms.
Explore the resource centre for practical materials, or visit the frequently asked questions page for further answers.
Send a concise description of what you are trying to understand and the stage your work has reached. Involvestory will help you identify relevant information.