Independent guidance for better public participation in health and care research
Archive publication

Report on involving children and young people in research

A record of learning from a mapping exercise and survey on involving children and young people as research advisers.

Young people working together at a table
About the report

Understanding advisory involvement

This report brings together findings from a mapping exercise and survey about the ways children and young people can contribute to research as advisers, rather than as study participants.

The work explored existing approaches, practical considerations and learning from those supporting involvement. It focuses on how research teams can create meaningful, age-appropriate opportunities for children and young people to help shape research questions, plans, materials and communication.

The publication is retained as an archive resource. Its findings are useful alongside current guidance, particularly when teams are planning roles, support and feedback for younger contributors.

Read the publication

Download the original report in PDF format.

What the report covers

Useful themes for planning involvement

Ways of working

Examples of how advisory roles can be organised, from early ideas through to sharing findings.

Support and access

Considerations for information, communication, timing and practical support that make involvement possible.

Learning for teams

Prompts for reflecting on influence, recording decisions and explaining outcomes to contributors.

Continue exploring

Plan for clear, supported contributions

Use current resources alongside this archive report when developing involvement with children and young people. Be clear about what can be influenced, provide accessible information and close the loop on decisions.