An archive of project accounts considering how online tools can support public involvement in research, from setting priorities to building advisory conversations.
These examples were assembled as part of a project exploring active public involvement through online channels. They are retained as historical learning material for teams considering digital participation.
The accompanying guidance considered practical questions about planning, access, moderation and feedback. Each account outlines the research context, the involvement approach, challenges encountered, resources used and learning for others.
The original collection documents different research settings and forms of online discussion. Linked files are preserved as source materials.
A partnership used short online updates, video material and mobile communication to involve people in identifying research priorities for an acne-related topic.
A local research and development team used a social platform to reach people who might contribute to an advisory group on patient safety research.
A mental health social research centre combined online updates and a blog to support conversations about possible research priorities.
A youth-focused project used an online community space to support involvement in research design and delivery around wellbeing and self-injury.
A clinical research group used an online community channel to ask parents and families about priorities for childhood rheumatology research.
A longitudinal project used online communication and video calls to involve young people over time.
An interactive website supported discussions with people affected by cystic fibrosis about research.
A kidney information network examined how digital channels could support information sharing, networking and social support.
An interactive website was used to involve people in conversations about applied health research.
Why the project sought public insight and which decisions were open to influence.
The digital channels, activities and support used to make involvement possible.
Practical considerations around communication, access and the work required.
How teams described the contribution of public perspectives to their work.
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