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This page preserves the original topic of international collaboration while updating language, contact details and presentation for the current Involvestory resource.

Independent guidance for better public participation in health and care research
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Current work

International working

Public involvement in health and care research is growing across many countries. Shared learning can help research become more relevant to the people and communities it aims to serve.

A shared direction

Connecting experience across borders

International collaboration creates space to compare approaches, share practical learning and strengthen public involvement in different health and care research settings.

Some countries have long-established ways for members of the public to help shape research. In others, this work is newer and still developing. In each setting, involvement needs to respond to local communities, research systems and priorities.

Involvestory presents the core ideas behind this work in accessible language. It supports open exchange between people and organisations who are interested in making public contribution visible, meaningful and useful.

What collaboration can support

Practical reasons to work together

International exchange is strongest when it is clear about purpose, inclusive in practice and open about what can be adapted in different contexts.

Share practical learning

Compare methods, accessible materials and ways of creating meaningful opportunities for public contribution.

Build useful evidence

Bring together experience and research evidence that can inform decisions without overlooking context.

Strengthen relationships

Create connections between public contributors, researchers and organisations with a shared interest in better research.

A thoughtful approach

Four prompts for international exchange

These prompts can help collaborators set up a conversation that is practical, respectful and clear about its purpose.

Start with context

Understand the health, research and community setting before assuming that an approach will transfer directly.

Include different voices

Make room for public contributors as well as researchers and organisations when shaping priorities and discussions.

Use clear language

Explain terms, avoid unnecessary jargon and provide information in formats people can use.

Share learning back

Record what was learned, what needs adapting and how the exchange can inform future work.

Questions to ask

International working FAQ

Does international collaboration mean using the same approach everywhere?

No. Shared principles can be helpful, but involvement should be designed with the people, institutions and practical circumstances of each setting in mind.

Who should be included in an international discussion?

Include people with relevant lived experience alongside researchers, facilitators and organisations. Consider whose perspectives may otherwise be absent.

How can teams communicate across different languages and systems?

Use plain language, explain specialist terms and allow enough time for questions, translation and careful interpretation of shared information.

What can teams learn from one another?

Teams can exchange approaches to inclusion, planning, support, feedback and reporting. They should also be transparent about limits and local differences.

Where can I find guidance for planning involvement?

Visit the researcher briefing notes or explore how to involve people in research.

Continue the conversation

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